Research Opportunity for Individuals with PWS

The University of Surrey is inviting parents and carers of children or young people with PWS to take part in a research project.  This project forms part of the Cerebra Network for Neurodevelopmental Disorders’ multi-site research collaboration across University of Birmingham, Aston University, University of Surrey, and University of Warwick.  The research focuses on understanding … Continue reading Research Opportunity for Individuals with PWS

Research Opportunity: The Neurodevelopment Lab at TCD

February 2022: To date 31 families have completed the first stage of our PWS research study.  A big thank you to all those families.  The information that you are sharing with us about your PWS family members is invaluable to our research.  We have recently finished analysing the data from the PWS caregivers and healthcare professionals … Continue reading Research Opportunity: The Neurodevelopment Lab at TCD

IMPORTANT UPDATE TO CONFERENCE REFUND SCHEME  for Families in Ireland

IMPORTANT UPDATE TO CONFERENCE REFUND SCHEME - PLEASE READ!  April 2022 Dear Families,  Having reviewed the increases in cost of living as well as seeking feedback from families, PWSAI have agreed to increase the amount of the refund scheme being offered for the International Conference.  We understand this is an important once in a lifetime … Continue reading IMPORTANT UPDATE TO CONFERENCE REFUND SCHEME  for Families in Ireland

Conference Posters for the Interdisciplinary day

An interdisciplinary approach to the treatment, education and support of children and adults with PWS. This is an interactive, educational meeting supporting competency development and knowledge sharing. Who should attend? All those interested in the holistic treatment and support of people living with PWS: clinical and educational psychologists, doctors, mental health professionals, nurses, social workers, … Continue reading Conference Posters for the Interdisciplinary day

Research: Listening to people with PWS across the world

Hello! My name is Kamila Lipiec, I am a postgraduate student at the University of Birmingham, UK. My supervisor is Dr. Kate Woodcock, a trustee of IPWSO and lecturer at Birmingham University.  Together with IPWSO, we are carrying out a study  ‘Listening to people with PWS across the world’. The study aims to hear from … Continue reading Research: Listening to people with PWS across the world

A Summary of Exciting PWS Research Developments

From The Autism and Rare Neurodevelopment Team at Trinity College Dublin: To mark International Rare Disease Day this year, we have worked on a summary of some of the most exciting research developments to emerge from PWS research.  Click here to read more on our website: PWS Research News (trinityautismresearch.com) We are very fortunate to work … Continue reading A Summary of Exciting PWS Research Developments

Educational focus at the Interdisciplinary Day – 9th July 2022 – IPWSO Conference

Hello! We're delighted to announce the Interdisciplinary day at the IPWSO conference. This will take place on 9th July 2022 and will see a whole range of experts from the world of Prader Willi Syndrome, from educational psychologists to teachers and medical professionals all joining together to share information on PWS in the classroom. There … Continue reading Educational focus at the Interdisciplinary Day – 9th July 2022 – IPWSO Conference