Learning from People with PWS

Jacob Zavitz talked about his personal story at the 2013 Foundation for Prader-Willi Syndrome Research conference held in Toronto.  You can access his presentation at: http://www.youtube.com/watch?v=6VV72fBvSv4

Yosuke is a young man from Japan who told his story for the International Prader-Willi Syndrome Organisation Conference held in Cambridge in 2013.  You can access it via IPWSO’s blog at: http://ipwso.blogspot.ie/2013/07/message-from-yosuke-self-advocate-from.html

In February 2013 PWSA-USA Advisory Board Member, Abbott Philson, called on everyone to help raise awareness about PWS.  You can access his video at: http://www.youtube.com/watch?v=lZgz_09eLw4

Canadian Paralympics and Special Olympics swimmer, Megan Michie, spoke at the April 2013 Foundation for Prader-Willi Syndrome Research Canada Conference.  You can access her presentation at: http://www.youtube.com/watch?v=G5ebjyDPrGs

A Recipe For Success: What YOU can Learn About Coping in a Food-Bombarded World From People With Prader-Willi Syndrome, an Extreme Eating Disorder is a book by Shelley Kinash containing compelling stories from people with PWS.  Available to purchase from Amazon and other book sellers.

Prader-Willi Syndrome: Growing Older is a book documenting the stories of adult Canadians with PWS.  It can be bought from Amazon or other book sellers.  A review of this book can be found at: http://www.prader-willi.ca/my-books/reviews/

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