Welcome to Prader Willi Syndrome Association Ireland.

What is Prader-Willi Syndrome? Watch our PWS Awareness video to find out! Don’t forget to turn up the volume to hear our professional narrator Molly, a super sibling to Fianna who just happens to have PWS.

If you are a Parent/Guardian to a person with PWS, we are here for you.

If you need information, advice or support, reach out to us.

If you are a Professional supporting a person with PWS, we can provide support through PWS specific training and resources.

Never hesitate to get in touch by emailing info@pwsai.ie

What is Prader-Willi Syndrome?

Prader-Willi syndrome (PWS) is a rare, complex genetic disorder that affects both males and females from birth and throughout their lives. It causes low muscle tone with consequent motor developmental delays, a mild to moderate learning difficulty, and emotional and social immaturity, which can lead to challenging behaviours.

During childhood, an overwhelming and insatiable chronic appetite usually develops which, without rigorous food management and exercise regimes, leads to food seeking and life threatening obesity.

PWS occurs randomly in about 1:15,000 births.

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