Come join in the fun of PWS 5km 2021 and raise funds for PWSAI! Run/Walk/Jog anywhere/anytime between 28-30th May 2021. To sign up, donate at the link below! https://www.idonate.ie/virtualpws5km We’ll miss your smiling faces so don’t forget to post your pics on social media using the #pws5km and please email your photos to be … Continue reading PWS 5Km Sign up!
Posts
A New Diagnosis of PWS
Dear New Parent, Congratulations on the birth of your baby! We are delighted that you have found us. Prader Willi Association Ireland (PWSAI) was founded by parents of children with Prader-Willi Syndrome (PWS) to provide support and advocate for people with PWS, their families and carers. As parents, we know what you are going through. … Continue reading A New Diagnosis of PWS
PWS Awareness on the radio!
A huge thank you to all the parents who are did radio interviews to help spread PWS Awareness during PWS Awareness Month May 2021. It is not an easy thing to share your personal story and even though we, as parents, are mastermind level experts in PWS and our own child, it can be difficult … Continue reading PWS Awareness on the radio!
PWS 5k! Are you ready!?
Have you a colourful start and finish line planned?? The PWS 5K team miss chalking and decorating the route! We can't wait to see your photos! Have you a team sign?? Don't forget to share with us, so we can cheer you on!! Go TEAM!!!!! Fancy Dress for the PWS 5K is ALWAYS encouraged!! If … Continue reading PWS 5k! Are you ready!?
The countdown is on.. just one week to go!
The countdown is on! Play-schools, schools and training centres are supporting PWS Go Orange Awareness Day and the PWS 5K! It all kicks off on Friday 28th May with Go Orange Day for PWS Awareness. This is a worldwide event that is growing bigger every year. The PWS 5K is taking place 28-30th May. You … Continue reading The countdown is on.. just one week to go!
It’s PWS Awareness month!! Here are ways you can get involved
Go orange for PWS Awareness on Friday 28th May! Get your friends and family to wear orange on Friday 28th May 2021 to spread awareness of PWS! Get your school to have a Go Orange day! Get everyone you know wearing orange! Please share your Go Orange photos with us for social media. You can … Continue reading It’s PWS Awareness month!! Here are ways you can get involved
PWSAI Members EAP programme
PWSAI is delighted to announce that from the 1st of April 2021 PWSAI are offering all of our family's access to the Employee Assistance Programme through the VHI. This service will be provided free of charge to all family members aged 16 years + The information you might need to have access to the services provided … Continue reading PWSAI Members EAP programme
Spring 2021 Newsletter
Our latest newsletter is now available. Happy Reading! PWSAI Newsletter Spring 2021Download
IPWSO conference
PWSAI will host the International Prader-Willi Syndrome Organisation conference in the University of Limerick from July 6th to 10th 2022. There will be contributions from scientific, clinical, and care provider professionals from around the globe. There will be an opportunity for parents and people with PWS to meet and interact with these professionals as well … Continue reading IPWSO conference
Managing your child’s PWS behavior
Produced by PWSAI, IPWSO, and PWSA-USA Educational film featuring Elizabeth Roof. https://www.youtube.com/watch?v=ls8aHNOTDY0;&rel=0
