Dear New Parent, Congratulations on the birth of your baby! We are delighted that you have found us. Prader Willi Association Ireland (PWSAI) was founded by parents of children with Prader-Willi Syndrome (PWS) to provide support and advocate for people with PWS, their families and carers. As parents, we know what you are going through. … Continue reading A New Diagnosis of PWS
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Participate in PWS Study – all Travel Costs Covered
Participants Still Needed for PWS Research Study We have been asked to share an opportunity for adults with Prader-Willi syndrome to take part in an important research study. Recruitment is now underway and the research team is actively scheduling visits. Appointments can be arranged throughout August and September, with additional dates available if needed. The … Continue reading Participate in PWS Study – all Travel Costs Covered
Introducing the PWSAI Mascot
🦁 Meet Lena – the PWSAI Mascot! 🦁 After much discussion and voting, the members of SUAS have chosen a name for our new mascot… Lena! This name couldn't be more fitting as PWSAI celebrates its 40th anniversary. Forty years ago, a mother called Lena opened her sitting room door and invited a handful of … Continue reading Introducing the PWSAI Mascot
Parent Speech & Language Support Session (0-3 years)
The NDECS (New Diagnosis & Early Childhood Support) Subcommittee are delighted to welcome Aoife Mooney, Speech and Language Therapist and Communication Coach, for a parent support session on 1st July at 8pm for families of children with Prader-Willi syndrome aged 3 years and under. To make this session as helpful and relevant as possible, Aoife … Continue reading Parent Speech & Language Support Session (0-3 years)
Prader Willi Syndrome Association Ireland 