LIVING WITH PRADER-WILLI SYNDROME MEANS A LIFETIME OF CHALLENGES… People with Prader-Willi Syndrome typically have to deal with constant hunger, extreme anxiety, scoliosis, sleep apnoea, low muscle tone, learning difficulties and a range of behavioural and mental health difficulties. Parents and carers of people with Prader-Willi Syndrome face challenges too. They may struggle bringing their … Continue reading Support us
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IPWSO conference
PWSAI will host the International Prader-Willi Syndrome Organisation conference in the University of Limerick from July 6th to 10th 2022. There will be contributions from scientific, clinical, and care provider professionals from around the globe. There will be an opportunity for parents and people with PWS to meet and interact with these professionals as well … Continue reading IPWSO conference
A New Diagnosis of PWS
If someone in your family has just received a diagnosis of PWS, we in PWSAI would be delighted to help you in any way we can. HenryLaura Hello, We’re happy you have found us. PWSAI is an organisation here to support people with PWS, their parents and carers. Most people have never heard of PWS … Continue reading A New Diagnosis of PWS
Managing your child’s PWS behavior
Produced by PWSAI, IPWSO, and PWSA-USA Educational film featuring Elizabeth Roof. https://www.youtube.com/watch?v=ls8aHNOTDY0;&rel=0
Therapeutic Interventions for the young child with PWS
Produced by PWSAI, IPWSO, and PWSA-USA Education film featuring Janice Agarwal. https://www.youtube.com/watch?v=-KtRnkoZdTw;&rel=0
A New Diagnosis of Prader-Willi Syndrome
Produced by PWSAI and IPWSO Educational film featuring Dr. Suzanne Cassidy and people who have Prader-Willi syndrome and their families. https://www.youtube.com/watch?v=cHPe-zb8vU4;&rel=0
Growth Hormone Therapy in Prader-Willi Syndrome
Produced by PWSAI and IPWSO Educational film featuring Dr Charlotte Höybye and people who have Prader-Willi syndrome and their families. https://www.youtube.com/watch?v=q9i6ygajeL0;&rel=0
Dietary Management in Prader-Willi Syndrome
Produced by PWSAI and IPWSO Educational film on dietary management in Prader-Willi syndrome featuring people who have Prader-Willi syndrome and their families. https://www.youtube.com/watch?v=FTzPCsLEGuM;&rel=0
Behaviour and Mental Health in Prader-Willi Syndrome
Produced by PWSAI and IPWSO Educational film featuring Professor Tony Holland and families of people who have Prader-Willi syndrome. https://www.youtube.com/watch?v=5MfuGXRXSKY;&rel=0
