Dear New Parent, Congratulations on the birth of your baby! We are delighted that you have found us. Prader Willi Association Ireland (PWSAI) was founded by parents of children with Prader-Willi Syndrome (PWS) to provide support and advocate for people with PWS, their families and carers. As parents, we know what you are going through. … Continue reading A New Diagnosis of PWS
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Parent Speech & Language Support Session (0-3 years)
The NDECS (New Diagnosis & Early Childhood Support) Subcommittee are delighted to welcome Aoife Mooney, Speech and Language Therapist and Communication Coach, for a parent support session on 1st July at 8pm for families of children with Prader-Willi syndrome aged 3 years and under. To make this session as helpful and relevant as possible, Aoife … Continue reading Parent Speech & Language Support Session (0-3 years)
It’s almost here- Are you ready for your PWS5K?
The PWS 5K is happening this weekend! We’ll be cheering everyone on, especially the incredible people with PWS taking on their own 5K challenge. Every donation to PWSAI helps support families across Ireland through welcome packs, SUAS socials, family events and our special 40th anniversary celebration in Barretstown this year. As a small charity, every … Continue reading It’s almost here- Are you ready for your PWS5K?
PWS 5K 2026
Join Us for the PWS 5K Weekend – 29 May to 1 June! The PWS 5K is all about being active with your friends and family, raising vital awareness and funds for PWSAI and most importantly, celebrating the incredible individuals with PWS who take part every year. Walk, run or cycle up to 5K – … Continue reading PWS 5K 2026
Prader Willi Syndrome Association Ireland 