Dear New Parent, Congratulations on the birth of your baby! We are delighted that you have found us. Prader Willi Association Ireland (PWSAI) was founded by parents of children with Prader-Willi Syndrome (PWS) to provide support and advocate for people with PWS, their families and carers. As parents, we know what you are going through. … Continue reading A New Diagnosis of PWS
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A Very Special Announcement – Our New Honorary President
As part of our 40th anniversary celebrations, past and present trustees of PWSAI came together to celebrate four decades of the Association and the people who have helped shape its journey. During the evening, we were incredibly proud to announce Don Tallon as PWSAI’s new Honorary President. This is a very special recognition for someone … Continue reading A Very Special Announcement – Our New Honorary President
SUAS Social 5th September – Registration open!
SUAS Social – Registration Now Open! We are delighted to announce that registration is now open for our next SUAS Social, taking place on Saturday, 5th September. The SUAS Social is open to people with Prader-Willi syndrome over the age of 13 years and their parent/carer. Please note that all people with PWS must be … Continue reading SUAS Social 5th September – Registration open!
Participate in PWS Study – all Travel Costs Covered
Participants Still Needed for PWS Research Study We have been asked to share an opportunity for adults with Prader-Willi syndrome to take part in an important research study. Recruitment is now underway and the research team is actively scheduling visits. Appointments can be arranged throughout August and September, with additional dates available if needed. The … Continue reading Participate in PWS Study – all Travel Costs Covered
Prader Willi Syndrome Association Ireland 