When your baby is in NICU. A guide to health care and feeding. A pdf resource by PWSA (USA), 2013.
PWS and Growth Hormone. A video by FPWR providing a short, clear overview of this therapy and its benefits
Growth Hormone Therapy in Prader-Willi Syndrome. A film featuring Dr Charlotte Höybye and people with PWS and their families by PWSAI and IPWSO.
Dr. Harold van Bosse and Janice Agarwal on Orthopedics, Scoliosis and PWS presented at the FPWR 2017
First Steps a Guide to Prader Willi Syndrome by Foundation for Prader Willi Research (FPWR)
Therapeutic Interventions for the Young Child with PWS. A video by Janice Agarwal, in association with PWSAI, PWS (USA) & IPWSO. Janice is a paediatric physical therapist who works solely with children who have PWS. She has lectured internationally on Developmental Interventions and Sensory Integration for hypotonic children and children with Prader-Willi Syndrome.
Dietary Management in Prader Willi Syndrome. A film featuring people with PWS and their families by PWSAI and IPWSO.
Route Map for Parents and Carers of Children with PWS aged 0 – 5 years. Please remember PWS is a spectrum disorder, your child may not experience all of these symptoms.
Breast Feeding your baby with PWS.
A guide by Libby Johnson 2020.
The Young Child with Prader-Willi Syndrome Physical and Sensory Issues and Recommendations by Janice M. Agarwal in association with PWS USA.
Standards of care for PWS by Dr. Jennifer Miller in association with FPWR.
Financial Supports available in Ireland