Our Vision

A WORLD WHERE PERSONS WITH PRADER WILLI SYNDROME, THEIR FAMILIES, AND THEIR CARERS ARE SUPPORTED IN ALL ASPECTS OF CARE, EDUCATION, AND WELL-BEING

Our Mission

TO RAISE AWARENESS AND UNDERSTANDING OF PWS AND TO IMPROVE THE CHOICE AND QUALITY OF CARE, EDUCATION AND SUPPORT FOR PERSONS WITH PWS

Our Objectives

1.To improve the quality of life of people with PWS and provide a forum where their voices are heard

2.To provide information and support to parentsand families of people with PWS 

3.To increase awareness and understanding ofthe syndrome among the general public 

4.To improve access to appropriate, high qualitysocial care supports for people with PWS

5.To improve access to high quality mental healthand clinical supports for people with PWS

6.To improve the successful participation ofpeople with PWSin education across the lifespan

7.To support research into Prader-WilliSyndrome.

PWSAI identifies as a community of families with a common challenge and a common bond. We support and care for each other. We connect with families, professionals and researchers at home and abroad to share ideas and knowledge about how best to live with Prader-Willi syndrome.

PWSAI aspires to make a positive difference to the lives of people in our community by providing an environment where individuals or groups can speak for themselves. We also advocate on behalf of those who cannot speak for themselves.

PWSAI commits to honesty, accountability and transparency in how we conduct all our affairs. We aspire to stand the test of scrutiny by all our stakeholders, and also members of the public, regulators and the media.

PWSAI aspires to justice, fairness, equality and dignity in how we conduct our relationships with others. We treat everyone equally and in a professional manner; and seek to uphold the human rights and diversity of all stakeholders.