Go Orange for PWS Awareness takes place on Friday 31st May. Let your school and workplace know. We'll be updating this post with Go Orange Day materials. wear-orange-for-pws-2024-englishDownload wear-orange-for-pws-2024-irishDownload
Upcoming Dates for your diary
Save the dates! Over the next week the website will be updated with: Go Orange Day Posters and PWS awareness materials PWS 5K - posters, idonate link for signing up and donating. RSVP form for the social event on June 15th for people with PWS (16 years+) and their parents/carer RSVP form for the parents … Continue reading Upcoming Dates for your diary
Research: A Study of Families Living with PWS
We are psychology researchers based in the University of Galway in Ireland. One of us is a parent of a son who has PWS. Our study will examine the experiences and well-being of families living with Prader-Willi Syndrome. If you are a parent/guardian of a person who has PWS, then please consider taking part in our study. The study … Continue reading Research: A Study of Families Living with PWS
Announcement!
Thank you to everyone who gave us their name suggestions for the PWS Holiday House Respite service by Resilience Healthcare. Everyones suggestions were brilliant and there was a common theme of 'a really brilliant place to stay!' Áit Shona which means Happy Place in Irish has been chosen! We think it embodies what it will mean … Continue reading Announcement!
Newsletter January 2024
To read our most recent newsletter, please visit here Thank you. To stay up to date with all PWSAI news, please ask to join our Whatsapp group for parents and carers of people with PWS.
Family Weekend 2024
For everything you need to know about the 2024 Family Weekend please click on the button below. Any questions, don't hesitate to get in touch. Family Weekend Information
What is Prader-Willi Syndrome?
What is Prader-Willi Syndrome? Prader-Willi syndrome (PWS) is a rare, complex genetic disorder that affects both males and females from birth and throughout their lives. It causes low muscle tone with consequent motor developmental delays, a mild to moderate learning difficulty, and emotional and social immaturity, which can lead to challenging behaviours. During childhood, an … Continue reading What is Prader-Willi Syndrome?
You are not alone
Always know there is someone to talk to for advice, support or just a conversation with a person who gets it..
Support us!
LIVING WITH PRADER-WILLI SYNDROME MEANS A LIFETIME OF CHALLENGES… People with Prader-Willi Syndrome typically have to deal with constant hunger, extreme anxiety, scoliosis, sleep apnoea, low muscle tone, learning difficulties and a range of behavioural and mental health difficulties. Parents and carers of people with Prader-Willi Syndrome face challenges too. They may struggle bringing their … Continue reading Support us!
A New Diagnosis of PWS
Dear New Parent, Congratulations on the birth of your baby! We are delighted that you have found us. Prader Willi Association Ireland (PWSAI) was founded by parents of children with Prader-Willi Syndrome (PWS) to provide support and advocate for people with PWS, their families and carers. As parents, we know what you are going through. … Continue reading A New Diagnosis of PWS
Prader Willi Syndrome Association Ireland 