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Go Orange Day is all about celebrating our amazing people with PWS and raising awareness. Don't forget to share your Go Orange photos with us for social media This is why we go Orange... to highlight PWS and make people aware of hyperphagia and the other symptoms associated with PWS. PWS Information for Awareness Day … Continue reading Go Orange for Prader Willi Syndrome Awareness 2023

The Assisted Decision-Making (Capacity) Act (ADMA) 2015 was signed into law in 2015 and finally commenced on the 26th of April 2023. The online information session will tell you all you need to know about the ADMA and discuss the impact of the Act on adults with PWS and their families. If you wish to attend … Continue reading Online Information Session: Assisted Decision Making Act

It's back and it's all about being active with your friends and family, celebrating the incredible people with PWS that we love. To take part, donate at this link https://www.idonate.ie/fundraiser/PWS5K2023 Suggested donations: €10 individual, €20 family. Spread the word, grab your friends and family and go for a walk/run anytime, anywhere over the weekend of … Continue reading PWS 5K 2023

To join please contact info@pwsai.ie for the link

We're looking for 5 people to take on Dublin Marathon for PWSAI. Not only will you get your Dublin marathon entry bib but you'll also have access to the VIP Expo and charity village marathon with as well as support with you training for the event! For more information and to register your interest click … Continue reading Could it be you?

PWSAI are offering all of our family's access to the Employee Assistance Programme through the VHI. This service will be provided free of charge to all family members aged 16 years + The information you might need to have access to the services provided is below.    PWSAI members EAP programme  The PWSAI Members Employee Assistance … Continue reading PWSAI members assistance programme

Wishing all our amazing people with PWS, their families and friends a very Happy Christmas.

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Join us to say Happy Christmas on Tuesday 20th December at 7pm online. Check your email for the link to join.

We are delighted to announce that the Family weekend in 2023 will be in the Garryvoe Hotel in East Cork form the 13th-15th October. The O'Neill family are busy planning an amazing weekend for us all! The first thing you need to do is to book your room directly with the hotel- details can be … Continue reading Family Weekend 2023