🦁 Meet Lena – the PWSAI Mascot! 🦁 After much discussion and voting, the members of SUAS have chosen a name for our new mascot… Lena! This name couldn't be more fitting as PWSAI celebrates its 40th anniversary. Forty years ago, a mother called Lena opened her sitting room door and invited a handful of … Continue reading Introducing the PWSAI Mascot
Parent Speech & Language Support Session (0-3 years)
The NDECS (New Diagnosis & Early Childhood Support) Subcommittee are delighted to welcome Aoife Mooney, Speech and Language Therapist and Communication Coach, for a parent support session on 1st July at 8pm for families of children with Prader-Willi syndrome aged 3 years and under. To make this session as helpful and relevant as possible, Aoife … Continue reading Parent Speech & Language Support Session (0-3 years)
It’s almost here- Are you ready for your PWS5K?
The PWS 5K is happening this weekend! We’ll be cheering everyone on, especially the incredible people with PWS taking on their own 5K challenge. Every donation to PWSAI helps support families across Ireland through welcome packs, SUAS socials, family events and our special 40th anniversary celebration in Barretstown this year. As a small charity, every … Continue reading It’s almost here- Are you ready for your PWS5K?
Prader Willi Syndrome Association Ireland 