SUAS Social – Registration Now Open!

We are delighted to announce that registration is now open for our next SUAS Social, taking place on Saturday, 5th September.

The SUAS Social is open to people with Prader-Willi syndrome over the age of 13 years and their parent/carer. Please note that all people with PWS must be accompanied by a responsible adult (18 years or older).


Our fantastic SUAS Subcommittee, made up of adults with PWS and supported by Gary, Emma and Ann is busy planning another enjoyable and engaging day for everyone. A full agenda will be shared closer to the event.

The day will:

  • Begin at 10.00am with tea, coffee and refreshments.
  • Includes lunch.
  • Finishes at 3.15pm.

To register, please complete the registration form here: SUAS SOCIAL Event Saturday 5th September (with workshop for parents and carers) – Fill in form

Running alongside the SUAS Social will be a dedicated workshop for parents and carers. This has been approved by the SUAS subcommittee.

The session, led by Gary, will be interactive, providing an opportunity to share experiences, discuss practical strategies and learn from one another.

Workshop theme:
Understanding Hyperphagia and Escalating Behaviour in Adolescents and Adults with Prader-Willi Syndrome

The workshop time will be confirmed closer to 5th September. This is open to parents and carers.

We look forward to welcoming you for another enjoyable day of connection, learning and support.