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Dear Parent/Guardian, We are currently gathering information to better understand the real cost of disability for individuals aged 16+ living with Prader-Willi Syndrome (PWS) in Ireland, including those living at home with family and those living in residential care settings. As you may know, the Department of Social Protection is reviewing disability payments. It is … Continue reading Cost of Disability payment review

Are you taking part in this year’s VHI Mini Marathon? Why not make your run even more meaningful by supporting Prader-Willi Syndrome Association Ireland (PWSAI)? By choosing to fundraise for PWSAI, you’ll be helping individuals and families across Ireland living with Prader-Willi Syndrome. Here’s how to get involved:1️⃣ Register for the VHI Women’s Mini Marathon.2️⃣ … Continue reading VHI Womens Mini Marathon

🧡 Go Orange for PWS Day – Date Change Announcement! 🧡 We’re excited to share an important update about Go Orange for PWS Day! After thoughtful discussion, our incredible SUAS subcommittee (made up of adults living with PWS) have voted to move Go Orange for PWS Day to May 15th each year. Previously, we recognised … Continue reading Go Orange Day Announcement