An interdisciplinary approach to the treatment, education and support of children and adults with PWS. This is an interactive, educational meeting supporting competency development and knowledge sharing. Who should attend? All those interested in the holistic treatment and support of people living with PWS: clinical and educational psychologists, doctors, mental health professionals, nurses, social workers, … Continue reading Conference Posters for the Interdisciplinary day
Research: Listening to people with PWS across the world
Hello! My name is Kamila Lipiec, I am a postgraduate student at the University of Birmingham, UK. My supervisor is Dr. Kate Woodcock, a trustee of IPWSO and lecturer at Birmingham University. Together with IPWSO, we are carrying out a study ‘Listening to people with PWS across the world’. The study aims to hear from … Continue reading Research: Listening to people with PWS across the world
A Summary of Exciting PWS Research Developments
From The Autism and Rare Neurodevelopment Team at Trinity College Dublin: To mark International Rare Disease Day this year, we have worked on a summary of some of the most exciting research developments to emerge from PWS research. Click here to read more on our website: PWS Research News (trinityautismresearch.com) We are very fortunate to work … Continue reading A Summary of Exciting PWS Research Developments
Newsletter Release – January 2022
Hello, Grab a cupan tae (cup of tea) and have a read of our most recent newsletter! January 2022 Newsletter Download
Educational focus at the Interdisciplinary Day – 9th July 2022 – IPWSO Conference
Hello! We're delighted to announce the Interdisciplinary day at the IPWSO conference. This will take place on 9th July 2022 and will see a whole range of experts from the world of Prader Willi Syndrome, from educational psychologists to teachers and medical professionals all joining together to share information on PWS in the classroom. There … Continue reading Educational focus at the Interdisciplinary Day – 9th July 2022 – IPWSO Conference
You are not alone
Always know there is someone to talk to for advice, support or just a conversation with a person who gets it..
Are you in the 2022?
Sign up here https://videopress.com/v/erAa6Ewm?resizeToParent=true&cover=true&preloadContent=metadata Are you in the 2022? 2022 is a huge year for PWSAI In July we will host the International Prader Willi Syndrome conference. To celebrate this once in a lifetime opportunity we want to get two thousand and twenty two people to move with us in 2022. Do as much or … Continue reading Are you in the 2022?
Christmas Tips
Christmas is almost here and there's no point in re-inventing the wheel, the PWS Association in New Zealand shared the below tips and they're really useful. The only thing I'll add is from a personal point of view. This will be our tenth Christmas with our son with PWS. Christmas has evolved to suit him … Continue reading Christmas Tips
Happy Halloween
Love it or loathe it? Halloween is not for everyone but I've always had really fond memories of it from my childhood. When my son with PWS was born, Halloween was the first big event that we came to after his diagnosis. I remember his first Halloween thinking how will we manage this event as … Continue reading Happy Halloween
Prader Willi Syndrome Association Ireland 