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Prader Willi Syndrome Association Ireland

Prader Willi Syndrome Association Ireland

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Author: emwa21

January 14, 2022 emwa21 Uncategorized

You are not alone

Always know there is someone to talk to for advice, support or just a conversation with a person who gets it..

January 7, 2022January 9, 2022 emwa21 Uncategorized

Are you in the 2022?

Sign up here https://videopress.com/v/erAa6Ewm?resizeToParent=true&cover=true&preloadContent=metadata Are you in the 2022? 2022 is a huge year for PWSAI In July we will host the International Prader Willi Syndrome conference. To celebrate this once in a lifetime opportunity we want to get two thousand and twenty two people to move with us in 2022. Do as much or … Continue reading Are you in the 2022?

December 23, 2021 emwa21 Uncategorized

Wishing you a Merry Christmas from all in PWSAI

December 20, 2021 emwa21 Uncategorized

Christmas Tips

Christmas is almost here and there's no point in re-inventing the wheel, the PWS Association in New Zealand shared the below tips and they're really useful. The only thing I'll add is from a personal point of view. This will be our tenth Christmas with our son with PWS. Christmas has evolved to suit him … Continue reading Christmas Tips

October 29, 2021October 29, 2021 emwa21 Uncategorized

Happy Halloween

Love it or loathe it? Halloween is not for everyone but I've always had really fond memories of it from my childhood. When my son with PWS was born, Halloween was the first big event that we came to after his diagnosis. I remember his first Halloween thinking how will we manage this event as … Continue reading Happy Halloween

July 10, 2021August 6, 2021 emwa21 Uncategorized

PWS in the Press 2021

A huge thank you to Michelle Rousseau, mum to Henri for doing an awareness piece. Thank you Michelle, it takes a lot to share your personal story. You can read it at this link here

May 26, 2021June 3, 2021 emwa21 Uncategorized

PWS Awareness on the radio!

A huge thank you to all the parents who are did radio interviews to help spread PWS Awareness during PWS Awareness Month May 2021. It is not an easy thing to share your personal story and even though we, as parents, are mastermind level experts in PWS and our own child, it can be difficult … Continue reading PWS Awareness on the radio!

May 24, 2021 emwa21 Uncategorized

PWS 5k! Are you ready!?

Have you a colourful start and finish line planned?? The PWS 5K team miss chalking and decorating the route! We can't wait to see your photos! Have you a team sign?? Don't forget to share with us, so we can cheer you on!! Go TEAM!!!!! Fancy Dress for the PWS 5K is ALWAYS encouraged!! If … Continue reading PWS 5k! Are you ready!?

May 21, 2021May 21, 2021 emwa21 Uncategorized

The countdown is on.. just one week to go!

The countdown is on! Play-schools, schools and training centres are supporting PWS Go Orange Awareness Day and the PWS 5K! It all kicks off on Friday 28th May with Go Orange Day for PWS Awareness. This is a worldwide event that is growing bigger every year. The PWS 5K is taking place 28-30th May. You … Continue reading The countdown is on.. just one week to go!

May 9, 2021May 9, 2021 emwa21 Uncategorized

It’s PWS Awareness month!! Here are ways you can get involved

Go orange for PWS Awareness on Friday 28th May! Get your friends and family to wear orange on Friday 28th May 2021 to spread awareness of PWS! Get your school to have a Go Orange day! Get everyone you know wearing orange!  Please share your Go Orange photos with us for social media.  You can … Continue reading It’s PWS Awareness month!! Here are ways you can get involved

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IPWSO Conference

Limerick, IrelandJuly 6, 2022
42 days to go.

Contact Information

Prader Willi Syndrome Association Ireland
Carmichael Centre
Carmichael House
North Brunswick Street
Dublin 7
IRELAND

Reg. CHY number:15171
CRA Reg. 20051693
Company Registration: 364058

PWSAI Family Liason:  Ann O’Neill
087 252 2832

PWSAI National Development Manager:  Gary Brennan   gary.brennan@pwsai.ie

087 385 1387

PWSAI Secretary: Emma Walsh info@pwsai.ie

For website matters, email: webmaster@pwsai.ie

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