The NDECS (New Diagnosis & Early Childhood Support) Subcommittee are delighted to welcome Aoife Mooney, Speech and Language Therapist and Communication Coach, for a parent support session on 1st July at 8pm for families of children with Prader-Willi syndrome aged 3 years and under.

To make this session as helpful and relevant as possible, Aoife would like to tailor her presentation to the specific needs of the families attending. We are therefore asking parents to share their questions, concerns and priorities in advance.

Please let us know:

  • Your child’s age
  • Any speech, language, communication or developmental concerns you would like support with
  • Questions you would like Aoife to address during the session
  • Your goals and hopes for your child’s development
  • A little about your child’s personality, interests and favourite activities
  • Anything else you feel would be helpful for Aoife to know

Understanding the children’s ages, personalities, strengths and challenges will help Aoife build a presentation that is practical, relevant and tailored to your family’s needs.

There are no right or wrong questions—if something is important to your family, we’d love to hear about it.

Please send your responses and register by Wednesday 17th June so that Aoife has time to prepare the session.

To register please fill in the form located here , answers to questions can also be submitted via the form.

Read more about Aoife’s experience here