From The Autism and Rare Neurodevelopment Team at Trinity College Dublin: To mark International Rare Disease Day this year, we have worked on a summary of some of the most exciting research developments to emerge from PWS research. Click here to read more on our website: PWS Research News (trinityautismresearch.com) We are very fortunate to work … Continue reading A Summary of Exciting PWS Research Developments
Love it or loathe it? Halloween is not for everyone but I've always had really fond memories of it from my childhood. When my son with PWS was born, Halloween was the first big event that we came to after his diagnosis. I remember his first Halloween thinking how will we manage this event as … Continue reading Happy Halloween
A huge thank you to all the parents who are did radio interviews to help spread PWS Awareness during PWS Awareness Month May 2021. It is not an easy thing to share your personal story and even though we, as parents, are mastermind level experts in PWS and our own child, it can be difficult … Continue reading PWS Awareness on the radio!
Go orange for PWS Awareness on Friday 28th May! Get your friends and family to wear orange on Friday 28th May 2021 to spread awareness of PWS! Get your school to have a Go Orange day! Get everyone you know wearing orange! Please share your Go Orange photos with us for social media. You can … Continue reading It’s PWS Awareness month!! Here are ways you can get involved