The PWS 5K is happening this weekend! We’ll be cheering everyone on, especially the incredible people with PWS taking on their own 5K challenge. Every donation to PWSAI helps support families across Ireland through welcome packs, SUAS socials, family events and our special 40th anniversary celebration in Barretstown this year. As a small charity, every … Continue reading It’s almost here- Are you ready for your PWS5K?
Rare Disease Day 2026
Why we need you to show your stripes on Rare Disease Day 2026 The theme for Rare Disease Day 2026 (February 28th) is “Equity.” This campaign calls for fair access to diagnosis, treatment and social opportunities because rare should never mean overlooked. Living with Prader-Willi Syndrome means needing structure, supervision and predictability in a world … Continue reading Rare Disease Day 2026
Prader Willi Syndrome Association Ireland 