We're delighted to announce that Éasca Péasca have designed some fantastic Go Orange for PWS Awareness tshirts, hoodies and more! Take a look here and place your order before 1st May for delivery! A huge thank you to Dean from Éasca Péasca. Go raibh míle maith agat You'll find Go Orange fro PWS Awareness Day … Continue reading Go Orange for PWS Awareness: Clothing & More!
Our PWSAI Mascot – help us to name it!
As part of our 40th anniversary as a charity, we invited our SUAS group to help shape something special for our community. We asked them to vote on a mascot, something that could: Represent the experiences of people living with Prader-Willi syndrome Create a strong, positive identity for our community Raise awareness in a way … Continue reading Our PWSAI Mascot – help us to name it!
Cost of Disability payment review
Dear Parent/Guardian, We are currently gathering information to better understand the real cost of disability for individuals aged 16+ living with Prader-Willi Syndrome (PWS) in Ireland, including those living at home with family and those living in residential care settings. As you may know, the Department of Social Protection is reviewing disability payments. It is … Continue reading Cost of Disability payment review
