Why we need you to show your stripes on Rare Disease Day 2026 The theme for Rare Disease Day 2026 (February 28th) is “Equity.” This campaign calls for fair access to diagnosis, treatment and social opportunities because rare should never mean overlooked. Living with Prader-Willi Syndrome means needing structure, supervision and predictability in a world … Continue reading Rare Disease Day 2026
Dietitian Referral
This service is open to all people with PWS in Ireland. PWSAI, with the support of the RTE Toy Show Appeal will fund two sessions with a dietitian who understands PWS. Please contact Emma to be referred at info@pwsai.ie or fill in the form located here
Registration Open: Moving Forward Seminar
Registration is now open for the Moving Forward seminar taking place on the 6th February for all those interested in what happens after secondary school for a person with Prader-Willi Syndrome. Information and registration is here Any questions, don't hesitate to get in touch info@pwsai.ie
Prader Willi Syndrome Association Ireland 