Are you taking part in this year’s VHI Mini Marathon? Why not make your run even more meaningful by supporting Prader-Willi Syndrome Association Ireland (PWSAI)? By choosing to fundraise for PWSAI, you’ll be helping individuals and families across Ireland living with Prader-Willi Syndrome. Here’s how to get involved:1️⃣ Register for the VHI Women’s Mini Marathon.2️⃣ … Continue reading VHI Womens Mini Marathon
Go Orange Day Announcement
🧡 Go Orange for PWS Day – Date Change Announcement! 🧡 We’re excited to share an important update about Go Orange for PWS Day! After thoughtful discussion, our incredible SUAS subcommittee (made up of adults living with PWS) have voted to move Go Orange for PWS Day to May 15th each year. Previously, we recognised … Continue reading Go Orange Day Announcement
Rare Disease Day 2026
Why we need you to show your stripes on Rare Disease Day 2026 The theme for Rare Disease Day 2026 (February 28th) is “Equity.” This campaign calls for fair access to diagnosis, treatment and social opportunities because rare should never mean overlooked. Living with Prader-Willi Syndrome means needing structure, supervision and predictability in a world … Continue reading Rare Disease Day 2026
Prader Willi Syndrome Association Ireland 