Dear New Parent, Congratulations on the birth of your baby! We are delighted that you have found us. Prader Willi Association Ireland (PWSAI) was founded by parents of children with Prader-Willi Syndrome (PWS) to provide support and advocate for people with PWS, their families and carers. As parents, we know what you are going through. … Continue reading A New Diagnosis of PWS
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Our PWSAI Mascot – help us to name it!
As part of our 40th anniversary as a charity, we invited our SUAS group to help shape something special for our community. We asked them to vote on a mascot, something that could: Represent the experiences of people living with Prader-Willi syndrome Create a strong, positive identity for our community Raise awareness in a way … Continue reading Our PWSAI Mascot – help us to name it!
Cost of Disability payment review
Dear Parent/Guardian, We are currently gathering information to better understand the real cost of disability for individuals aged 16+ living with Prader-Willi Syndrome (PWS) in Ireland, including those living at home with family and those living in residential care settings. As you may know, the Department of Social Protection is reviewing disability payments. It is … Continue reading Cost of Disability payment review
VHI Womens Mini Marathon
Are you taking part in this year’s VHI Mini Marathon? Why not make your run even more meaningful by supporting Prader-Willi Syndrome Association Ireland (PWSAI)? By choosing to fundraise for PWSAI, you’ll be helping individuals and families across Ireland living with Prader-Willi Syndrome. Here’s how to get involved:1️⃣ Register for the VHI Women’s Mini Marathon.2️⃣ … Continue reading VHI Womens Mini Marathon
Prader Willi Syndrome Association Ireland 