Hello! My name is Kamila Lipiec, I am a postgraduate student at the University of Birmingham, UK. My supervisor is Dr. Kate Woodcock, a trustee of IPWSO and lecturer at Birmingham University. Together with IPWSO, we are carrying out a study ‘Listening to people with PWS across the world’. The study aims to hear from … Continue reading Research: Listening to people with PWS across the world
PWS Awareness on the radio!
A huge thank you to all the parents who are did radio interviews to help spread PWS Awareness during PWS Awareness Month May 2021. It is not an easy thing to share your personal story and even though we, as parents, are mastermind level experts in PWS and our own child, it can be difficult … Continue reading PWS Awareness on the radio!
The countdown is on.. just one week to go!
The countdown is on! Play-schools, schools and training centres are supporting PWS Go Orange Awareness Day and the PWS 5K! It all kicks off on Friday 28th May with Go Orange Day for PWS Awareness. This is a worldwide event that is growing bigger every year. The PWS 5K is taking place 28-30th May. You … Continue reading The countdown is on.. just one week to go!
Prader Willi Syndrome Association Ireland 