Save the dates! Over the next week the website will be updated with: Go Orange Day Posters and PWS awareness materials PWS 5K - posters, idonate link for signing up and donating. RSVP form for the social event on June 15th for people with PWS (16 years+) and their parents/carer RSVP form for the parents … Continue reading Upcoming Dates for your diary
Research: A Study of Families Living with PWS
We are psychology researchers based in the University of Galway in Ireland. One of us is a parent of a son who has PWS. Our study will examine the experiences and well-being of families living with Prader-Willi Syndrome. If you are a parent/guardian of a person who has PWS, then please consider taking part in our study. The study … Continue reading Research: A Study of Families Living with PWS
Announcement!
Thank you to everyone who gave us their name suggestions for the PWS Holiday House Respite service by Resilience Healthcare. Everyones suggestions were brilliant and there was a common theme of 'a really brilliant place to stay!' Áit Shona which means Happy Place in Irish has been chosen! We think it embodies what it will mean … Continue reading Announcement!
Prader Willi Syndrome Association Ireland 