We can't wait to celebrate with everyone at the opening of Ait Shona, the dedicated respite service for people with PWS provided by Resilience Healthcare. It will be officially opened by Minister of Disability Anne Rabbitte TD and Henry Tierney, who has been an active champion for a Holiday House for everyone with PWS. Saturday … Continue reading RSVP – Ait Shona Open Day
Save the date: Ait Shona Open Day (The PWS Holiday house)
Add it to you calendar now, the open day for Ait Shona, the PWS Holiday House - respite service being provided by Resilience Healthcare will be on Saturday 7th September. There'll be more details soon but for now add it to you diary. Come along on the day for the official opening, have a tour … Continue reading Save the date: Ait Shona Open Day (The PWS Holiday house)
Registration Open- Virtual Screening: The Life You’re Given
You are invited to a special virtual film screening of THE LIFE YOU’RE GIVEN followed by a live Q&A with parents and filmmakers Jay Coggeshall and Susan Henoch. ABOUT THE FILM: Sophie was born with a rare genetic disorder, Prader-Willi syndrome (PWS), which affects roughly one in every 15,000 births. Filmed over 35 years, THE … Continue reading Registration Open- Virtual Screening: The Life You’re Given
Prader Willi Syndrome Association Ireland 