You are invited to a special virtual film screening of THE LIFE YOU’RE GIVEN followed by a live Q&A with parents and filmmakers Jay Coggeshall and Susan Henoch. ABOUT THE FILM: Sophie was born with a rare genetic disorder, Prader-Willi syndrome (PWS), which affects roughly one in every 15,000 births. Filmed over 35 years, THE … Continue reading Registration Open- Virtual Screening: The Life You’re Given
ADMA Information sessions
Gary will be hosting an information session about the ADMA (Assisted Decision Making Act) with a Q&A afterwards. Thursday 13th June 10.30 to 11.30am (Morning) To book your place at the webinar please follow the link below Thursday 13th Morning session
PWS Awareness Day Materials 2024
Go Orange for PWS Awareness takes place on Friday 31st May. Let your school and workplace know. We'll be updating this post with Go Orange Day materials. wear-orange-for-pws-2024-englishDownload wear-orange-for-pws-2024-irishDownload
Prader Willi Syndrome Association Ireland 