Hello, Please see below our statement on VY KAT XR. We hope this answers the questions we have received on it. If you have any questions, don't hesitate to get in touch with us. PWSAI VYKAT XR statement March 2025Download
Pancake Tuesday
Here are 6 practical tips for making Pancake Tuesday enjoyable while considering the unique needs of a person with Prader-Willi Syndrome (PWS): 1️⃣ Plan the Day Together Involve your child in discussions beforehand so they know what to expect and feel included in the celebration. 2️⃣ Use a Recipe That Works for Your Child Adapt … Continue reading Pancake Tuesday
Online session on Food Security and PWS for Parents/Carers of children with PWS age 12 and under
We Want to Hear from You! 🗣️ We are planning an online session on Food Security & Prader-Willi Syndrome to cover the who, what, when, and where of food security. This session is designed for parents and carers of children with PWS aged 12 and under, but it’s also open to grandparents, extended family members, … Continue reading Online session on Food Security and PWS for Parents/Carers of children with PWS age 12 and under
Prader Willi Syndrome Association Ireland 