Add it to you calendar now, the open day for Ait Shona, the PWS Holiday House - respite service being provided by Resilience Healthcare will be on Saturday 7th September. There'll be more details soon but for now add it to you diary. Come along on the day for the official opening, have a tour … Continue reading Save the date: Ait Shona Open Day (The PWS Holiday house)
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Registration Open- Virtual Screening: The Life You’re Given
You are invited to a special virtual film screening of THE LIFE YOU’RE GIVEN followed by a live Q&A with parents and filmmakers Jay Coggeshall and Susan Henoch. ABOUT THE FILM: Sophie was born with a rare genetic disorder, Prader-Willi syndrome (PWS), which affects roughly one in every 15,000 births. Filmed over 35 years, THE … Continue reading Registration Open- Virtual Screening: The Life You’re Given
ADMA Information sessions
Gary will be hosting an information session about the ADMA (Assisted Decision Making Act) with a Q&A afterwards. Thursday 13th June 10.30 to 11.30am (Morning) To book your place at the webinar please follow the link below Thursday 13th Morning session
Prader Willi Syndrome Association Ireland 