LIVING WITH PRADER-WILLI SYNDROME MEANS A LIFETIME OF CHALLENGES… People with Prader-Willi Syndrome typically have to deal with constant hunger, extreme anxiety, scoliosis, sleep apnoea, low muscle tone, learning difficulties and a range of behavioural and mental health difficulties. Parents and carers of people with Prader-Willi Syndrome face challenges too. They may struggle bringing their … Continue reading Support us!
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A New Diagnosis of PWS
Dear New Parent, Congratulations on the birth of your baby! We are delighted that you have found us. Prader Willi Association Ireland (PWSAI) was founded by parents of children with Prader-Willi Syndrome (PWS) to provide support and advocate for people with PWS, their families and carers. As parents, we know what you are going through. … Continue reading A New Diagnosis of PWS
Prader Willi Syndrome Association Ireland 