We Want to Hear from You! 🗣️

We are planning an online session on Food Security & Prader-Willi Syndrome to cover the who, what, when, and where of food security. This session is designed for parents and carers of children with PWS aged 12 and under, but it’s also open to grandparents, extended family members, childminders, and anyone involved in your child’s care.


We want to make sure we cover everything that matters to you. No question is too small or too silly—if you’re wondering about it, chances are someone else is too! Whether it’s about managing food access at home, school challenges, meal planning, or handling food-related behaviors, send us your questions in advance.

Send your questions our way at the link located here, and let’s make this session as helpful as possible!