Dietary Management in Prader-Willi Syndrome. Educational film produced by PWSAI in cooperation with IPWSO in 2014 featuring Irish people with PWS and their families.
Need to Know Nutrition for Children with Prader-Willi Syndrome. An accessible Guide for parents and carers. Freely available at: http://media.wix.com/ugd/a71d4c_9055a2900becfefe090122a066742f68.pdf
Nutritional Phases in Prader-Willi Syndrome. Influential 2012 article by leading PWS researchers and clinicians that describes 7 nutritional phases in PWS. Freely available at: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3285445/
A reduced-energy intake, well-balanced diet improves weight control in children with Prader-Willi syndrome. 2012 publication from leading PWS researchers that suggests that a reduced energy, well-balanced diet (based on 30% fat, 45% carbohydrates and 25% protein with at least 20g of fibre a day) will improve weight control compared to a simple energy-restricted diet. Freely available at: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4112078/
A Prader-Willi Food Pyramid. Modification of traditional food pyramid for people with PWS. Freely available at: https://www103.ssldomain.com/pwsausa/syndrome/foodpyramid.htm
Healthy Eating with Prader-Willi Syndrome. Easy-to-understand guide that describes why good dietary management is essential in PWS and provides a range of recipes. Available to purchase from PWSA UK at http://www.pwsa.co.uk/index.php/what-is-pws/186-publications
Prader-Willi Syndrome: A Review for Pediatric Nutrition Professionals. 2009 article freely available (although you will have to register to access it) from: http://can.sagepub.com/content/1/5/282
Beyond the Diet: For the Dietician. Article from “The Gathered View” published by the PWSA (USA). Freely available at: http://media.wix.com/ugd/a71d4c_0c20689f8c0c5384c26fb50e09f0fa7f.pdf
The Second International Conference on Hyperphagia took place in Baton Rouge, Louisiana in 2012. You can view the presentations made at the conference at: http://www.hyperphagia.org/presentations2012.htm
A Recipe For Success: What YOU can Learn About Coping in a Food-Bombarded World From People With Prader-Willi Syndrome, an Extreme Eating Disorder. Book by Shelley Kinash containing compelling stories from people with PWS. Available to purchase from Amazon and other book sellers.