Dietary Management in Prader-Willi Syndrome. Educational film produced by PWSAI in cooperation with IPWSO in 2014 featuring Irish people with PWS and their families.

Need to know Nutrition

Need to Know Nutrition for Children with Prader-Willi Syndrome.  An accessible Guide for parents and carers.  Freely available at: http://media.wix.com/ugd/a71d4c_9055a2900becfefe090122a066742f68.pdf

Nutritional phases

Nutritional Phases in Prader-Willi Syndrome.  Influential 2012 article by leading PWS researchers and clinicians that describes 7 nutritional phases in PWS.  Freely available at: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3285445/

Reduced energy intake

A reduced-energy intake, well-balanced diet improves weight control in children with Prader-Willi syndrome.  2012 publication from leading PWS researchers that suggests that a reduced energy, well-balanced diet (based on 30% fat, 45% carbohydrates and 25% protein with at least 20g of fibre a day) will improve weight control compared to a simple energy-restricted diet. Freely available at: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4112078/

PW Food Pyramid

A Prader-Willi Food Pyramid.  Modification of traditional food pyramid for people with PWS.  Freely available at: https://www103.ssldomain.com/pwsausa/syndrome/foodpyramid.htm

healthy_eating

Healthy Eating with Prader-Willi Syndrome.  Easy-to-understand guide that describes why good dietary management is essential in PWS and provides a range of recipes.  Available to purchase from PWSA UK at http://www.pwsa.co.uk/index.php/what-is-pws/186-publications

Review for Pediatric Nutrition Professionals

Prader-Willi Syndrome: A Review for Pediatric Nutrition Professionals. 2009 article freely available (although you will have to register to access it) from: http://can.sagepub.com/content/1/5/282

Beyond the Diet

Beyond the Diet: For the Dietician. Article from “The Gathered View” published by the PWSA (USA).  Freely available at: http://media.wix.com/ugd/a71d4c_0c20689f8c0c5384c26fb50e09f0fa7f.pdf

hyperphagiaconf

The Second International Conference on Hyperphagia took place in Baton Rouge, Louisiana in 2012.  You can view the presentations made at the conference at: http://www.hyperphagia.org/presentations2012.htm

recipe for success

A Recipe For Success: What YOU can Learn About Coping in a Food-Bombarded World From People With Prader-Willi Syndrome, an Extreme Eating Disorder. Book by Shelley Kinash containing compelling stories from people with PWS.  Available to purchase from Amazon and other book sellers.