The FamCare committee of IPWSO publishes guidance on how to assist families caring for people with PWS at home. To date they have prepared documents on the following:
The Basics of a Healthy Adult Lifestyle
Story-telling (confabulation) in PWS
Supporting people with PWS, their parents and carers
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- Family Workshop June 2020
- IPWSO Conference 2022
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- Virtual PWSAI Family Weekend 2020
- PWSAI Memories
- »About PWSAI
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- Introduction to Prader-Willi Syndrome
- Medical Overview
- Learning from People with PWS
- Nutrition and Hyperphagia
- Exercise and Physical Therapy
- Behaviour Management
- Orthopaedics
- Education
- Caring for Adults with PWS at Home
- Ageing in Prader-Willi Syndrome
- Growth Hormone and Endocrinology
- Gastric Issues
- Financial supports
- International PWS Organisations
- Wednesday webLINK
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- »New Diagnosis
- News and Events
- Dates for your diary 2020
- Newsletters
- Notes and News Archive
- Past Events
- AGM 2013
- AGM 2017
- Annual Conference 2013
- Annual Conference 2014
- Family Support Weekend 2013
- Galway Cycle 2014
- Intel Cheque Presentation 2013
- Intel Cheque Presentation 2014
- International 15q Day: 15th November 2013
- Lake Region Medical 2013
- PWS 5K 2014
- PWS 5K 2016
- PWS 5K 2017
- PWSAI Family Day 2014
- PWSAI Family Day 2015
- PWSAI Family Day 2016
- PWSAI Family Day 2017
- PWSAI National Survey Launch 2017
- Residential and Respite Care Info & Discussion Day 2016
- »Media
- »RESEARCH
- »RESPITE AND RESIDENTIAL CARE
Browse our Resources
Contact Information
Prader Willi Syndrome Association Ireland
Carmichael Centre
Carmichael House
North Brunswick Street
Dublin 7
IRELAND
Telephone: (087)2522832
Email: info@pwsai.ie
For website matters, email: webmaster@pwsai.ie
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