Ageing in Prader-Willi Syndrome

ipwso health and wellness

General Health in PWS.  Accessible summary of key medical issues for adults with PWS. Freely available from IPWSO at: http://www.ipwso.org/assets/uploads/articles/aging-in-pwscollected-articles.pdf#!health-and-wellness/c16pa

four articles

Four Articles on Aging in PWS.  Collection of articles on aging in PWS that first appeared in “The Gathered View” in 2011 and made available by PWSA USA through the IPWSO website at: http://www.prader-willi.dk/materiale/videnskabelige-artikler/aging-may

physical health

Physical health problems in adults with Prader-Willi syndrome.  2011 article on prevalence of physical health problems among 102 adults with PWS.  Abstract freely available at: http://www.ncbi.nlm.nih.gov/pubmed/21834028

use of medical care

The use of medical care and the prevalence of serious illness in an adult Prader-Willi syndrome cohort.  A study of 102 adults with PWS published in 2013.  Abstract freely available at: http://www.ncbi.nlm.nih.gov/pubmed/23792791

twelve persons

Aging in Prader-Willi syndrome: Twelve persons over the age of 50 years.  Article published in 2012 and freely available at: http://www.ncbi.nlm.nih.gov/pubmed/22585395

medical management

Medical Management for Adults with Prader-Willi Syndrome.  Study of adults with PWS focusing on diabetes, published in 2013.  Abstract freely available at: http://www.ncbi.nlm.nih.gov/pubmed/23869419

growing older

Prader-Willi Syndrome: Growing Older.  Book documenting the stories of adult Canadians with PWS.  It can be bought from Amazon or other book sellers.  A review of this book can be found at: http://www.prader-willi.ca/my-books/reviews/

Prader-Willi Syndrome: Care of Adults in General Practice. Academic article published in 2013 and freely available at: http://www.racgp.org.au/afp/2013/januaryfebruary/prader-willi-syndrome/