As featured on our Wednesday webLINK of 17 July 2013: Jacob Zawitz, an articulate and inspiring man with PWS, talked about his personal story at the 2013 Foundation for Prader-Willi Research conference held in Toronto.
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Inspiring speech
As featured on our Wednesday webLINK of 29 May 2013: Inspiring speech from Canadian Paralympics and Special Olympics swimmer, Megan Michie, who also has PWS.
Living with Prader-Willi Syndrome
As featured on our Wednesday webLINK of 22 May 2013: PWS Awareness Month. Around the world May is recognised as PWS Awareness Month. We are happy to draw your attention to this video by PWSA-USA Advisory Board Member, Abbott Philson, calling on everyone to help raise awareness about PWS this May.
“Oisín’s Story”
Here is a link to RTÉ Radio's Documentary on One on Prader-Willi Syndrome: "Oisín's Story": http://www.rte.ie/radio1/doconone/radio-documentary-oisins-story-prader-willi.html From the RTÉ website: Oisín O'Neill is the best in his family at feeding the chickens, dancing with abandon and keeping everyone to their routines. He's a slender boy of eight, with the whitest of white blond hair. Oisín … Continue reading “Oisín’s Story”
“The Morning Show” (TV3)
http://www.tv3.ie/videos.php?show_cal=2&newspanel&showspanel&locID=1.65.370&date_mode=1&date=2011-11-14 From the TV3 Website: Mon 14 Nov 2011 We hear from two families who have been affected with the condition Prader Willi Syndrome This extract features the O'Neill family:
“Would You Believe: Dara” (RTE)
http://www.rte.ie/tv/wouldyoubelieve/dara.html From the RTE website: Dara Meyler is an engaging, determined 13-year-old who lives with his family in the Dublin suburbs. Most people wouldn't spot anything unusual upon first meeting him, but he is unusual in that he never eats sweets or chocolate - his treat has always been a diet yoghurt. In fact, Dara … Continue reading “Would You Believe: Dara” (RTE)
“One in a Million” (TV3)
We investigate the courage and heart-ache behind families of children with rare genetic disorders. Broadcast: Wednesday, December 21, 2011 at 21:00 Duration: 00:48:21 Website: http://www.tv3.ie/3player/show/276/43691/1/Specials
“The Scanner”
The film shows how the latest computing technology influences the lives of patients with Prader-Willi Syndrome. It features Dr Alastair Garfield and Kate McAllister MA, who are members of a team led by Professor Tony Holland at Cambridge University (Video courtesy of Cambridge Psychiatry/@psychiatry_ucam).
What is Prader-Willi?
This short video provides an overview of Prader-Willi Syndrome (Courtesy One SMALL Step, Canada).
Endocrinology and PWS
Dr Siobhan Pittock talks about how endocrinologists at the Mayo Clinic treat Prader Willi Syndrome (Video courtesy of the Mayo Clinic)
