WELCOME. On 17 September 2014 PWSAI will welcome world-renowned speakers on PWS from the US, the UK, Germany, Denmark and Australia as well as Ireland for its 2014 conference. The programme will feature presentations that focus specifically on Prader-Willi Syndrome in adults, presentations that focus specifically on Prader-Willi Syndrome in children, and presentations that will be of relevance to both groups. The topics covered include residential care provision, health issues, physical therapy, genetics, and advances in PWS research.
All of the international speakers who will present at this conference are affiliated with the International Prader-Willi Syndrome Organisation (IPWSO) and PWSAI is very grateful for IPWSO’s support in organising this event. PWSAI is also very grateful to the organisers of the Galway Cycle 2014 and to the Hospital Saturday Fund for the generous financial support they have provided for this conference.
All intended delegates are requested to refer here for important information about the conference
- Biographical notes about the speakers can be found here
- For the conference poster, click here
|08:15-09:00||Registration and coffee|
|09:00-09:15||Welcome and introductions|
Overview of supported living for adults with PWS in Germany
Healthcare for adults with PWS and evolution and development of adult services in Denmark
Family Care and physical therapy for people with PWS
Questions to panel
The genetics of PWS
Profile of a Prader-Willi specific clinic
PWS from a research perspective: How are new interventions developed?
Overview of health issues for children with PWS
Questions to panel
Services offered by IPWSO
Overview of current PWS research
The Conference Venue is Bewleys Hotel Dublin AirportThis Bewleys Hotel offers a free 24-hour shuttle to and from Dublin Airport, which is 7 minutes away. Located just off the M1/M50, it has a regular bus service to Dublin’s centre, which is just 8 miles away. >> Contact: http://www.bewleyshotels.com/dublin_airport // Telephone: 01 8711000 (Direct Dial)
How to Register
Advance payment and registration for this conference are essential – it will not be possible to register and pay on the day.
Due to generous sponsorship from the Galway Cycle 2014 and the Hospital Saturday Fund the conference fee is only €15 per person, which includes lunch and other refreshments.
Registration is now OPEN. To register, click here (links to iregister.ie)
For queries, contact Ann Grassick on (087) 9354914 or firstname.lastname@example.org
For the Media
Prader-Willi Syndrome is a complex genetic disorder that typically causes low muscle tone, short stature, incomplete development of the genitalia, cognitive disabilities, and problem behaviours, and is probably most recognised by a chronic feeling of hunger that can lead to excessive eating and subsequent life-threatening obesity. The condition, which is caused by the absence of certain genes on chromosome 15, was first described in 1956 by Swiss doctors Prader, Willi, and Labhart. For further information, see our PWS FAQ here.