Notes and News Archive

We will archive our website’s Notes and News entries here. For early announcements, don’t forget to also check out our Facebook page and Tweets!

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GC photo gallery
Int 15q heading Europe


Looking for a good read?

The Race Around Ireland is a non-stop 2,200 km bicycle race that circumnavigates the island of Ireland anti-clockwise. In January 2014, a group of cyclists from Maynooth Students for Charity Cycling Club (who organise the Galway Cycle) decided to take on the challenge. This is the story, as told through the recollections of the participants, of how a bunch of Average Joes conquered the race and set a new Irish record time. The team chose to use the race to help raise awareness of Prader-Willi syndrome and are now very generously donating all profits from the book to PWSAI.

We think it deserves to become a best-seller! Buy your copy here.

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>>Ann O’Neill and friends (above) raised a fantastic €6,000 at the Cork City Marathon.  We are deeply grateful for their generous support!


10 October 2013 // For over a quarter of a century Maynooth Students for Charity have organised an annual cycle from Maynooth to Galway. The Galway Cycle is now a major fundraising event and has, to date, raised over €1,000,000. PWSAI is honoured and delighted to have been named as the Galway Cycle Charity for 2014. We look forward to a fantastic event next March that will enable us to both raise awareness about PWS and raise funds to support those with PWS in Ireland. Thank you to all involved!



25 September 2013 // PWSAI was delighted to receive a donation of $1,060 from the Intel Foundation recently. We are very grateful for Intel’s support. Our photograph shows Anthony Carr, PWSAI Chairperson and Intel employee, pictured with Séan Kelly, PWSAI Treasurer.


13 July 2013 // Many congratulations to all those who participated in the Flora Women’s Mini Marathon and the Cork City Marathon on behalf of PWSAI recently. We are very grateful! Our photo [click to enlarge] shows Michelle and friends from Wexford flying the flag for PWSAI in the Flora Women’s Mini Marathon

Ballycotton_10_logo220 February 2013 // PWSAI is honoured and delighted to have been nominated as a charity for the famous Ballycotton ’10’ road race, which takes on Sunday, March 3rd. We would like to sincerely thank all those already busy fundraising for us and to wish all the runners well. More information about the Ballycotton ’10’ can be found at:

lakeregionwide31 January 2013 // PWSAI is delighted to have been chosen as one of Lake Region Medical’s nominated charities for 2013. We would like to sincerely thank all the staff in New Ross for helping raise awareness about PWS and for fundraising to support our cause. More information about Lake Region Medical can be found at:

13 January 2013 // We have now compiled an PWSAI ACTIVITY REPORT 2012 outlining the work the Society has been completing over the past year. Click here to read it.

28 October 2012 // You can donate to PWSAI by clicking on the ‘Donate securely of iDONATE’ button on the right-hand side of our homepage. Why not test it out!

28 October 2012 // Like other organisations PWSAI is very concerned about possible cuts to services for people with disabilities. A national march calling on the Government to honour the promises it made to people with disabilities in the 2011 Programme for Government is being organised by the Disability Rights Coalition. The march is scheduled to take place on November 21 2012 leaving from the Central Bank and proceeding to Leinster House. If you are interested in finding out more about this march please see the Disability Rights Coalition website at:

1 October 2012: MEMBERSHIP SURVEY // PWSAI is currently considering formalising its membership structure.  As part of this we are currently surveying the views of all families who have been previously been in contact with PWSAI.  If you have not already received a survey and would like to participate please email

1 October 2012 // The operation of the Domiciliary Care Allowance Scheme is currently being reviewed by the Department of Social Protection. As part of this review submissions have been invited from interested parties. PWSAI has made a submission as part of this process, which is available to view here.

1 October 2012 // We would like to say a big “Thank You” to Ann Grassick, Tom Harty, Lena Lawlor, and their families for holding a bucket collection at Croke Park on the weekend of 23 September 2012. They collected a fantastic €1,100 for PWSAI. Their efforts are greatly appreciated.