PWSAI was started by parents in the late 1980s as a support group for people with PWS and their families in Ireland. It formalised its status in 2002 when it became a company limited by guarantee. It has retained company status since and in 2012 changed its memorandum and articles of association to allow it to begin formally registering members. PWSAI has a full-time Development Officer whose role is fully funded and it also relies on volunteers for other  activities. It is audited annually and submits annual accounts to the Companies Office.

Our Board of Trustees

At the 2020 AGM the following directors were elected for 2020- 2021:

Anthony Carr – Chairperson

Sean Kelly = Treasurer

Emma Walsh-Tierney – Secretary

Don Tallon

Derek Corrigan

Rory Tierney

Conor McHugh

Michelle Meadows – Rousseau

Jane Cox

Yvonne Rochford

Ann McCrann


Registered Office

Carmichael Centre
North Brunswick Street
Dublin 7

Charitable Statue Reference

CHY 15171

Donations and Fundraising

PWSAI is always interested in hearing from anyone with fundraising suggestions. We receive no state or ongoing private funding and rely entirely on fundraising and donations to cover our costs. If you would like to make a donation or discuss fundraising events, please contact us at